Aaron Wong, 40, is on a mission to achieve independence despite his rare condition, Charcot-Marie-Tooth disease.
In a heartwarming story of community support and determination, Singaporean Aaron Wong has successfully raised over S$130,000 to fund a wheelchair-accessible built-to-order (BTO) flat, marking a significant milestone in his pursuit of independent living.
At 40 years old, Wong lives with Charcot-Marie-Tooth disease, a rare form of muscular dystrophy that he was diagnosed with at the age of 12. The condition causes gradual muscle weakness, and by the time he was 30, Wong could no longer stand up from a seated position without assistance. Despite these challenges, he has been unwavering in his goal to live a life of independence, just like his peers.
The crowdfunding campaign, which garnered significant public support, will help Wong purchase and renovate a two-room BTO flat to accommodate his needs. The renovations will include features such as built-in smart, assistive technology to ensure accessibility, providing Wong with the autonomy he desires.
Wong’s journey reflects his belief that independence is about living life without barriers. “As a person identified with a disability, I define independence as the ability to live out your life to the fullest, barrier-free,” Wong shared in an interview with the local social enterprise Will & Well. “The ability to live out your dreams.”
Wong’s drive to live independently goes beyond just having his own home; it symbolizes his ongoing fight to maintain agency and dignity despite his condition. His story has inspired many, showing that with determination and the support of the community, individuals with disabilities can achieve their dreams.
